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Living With Lou Gehrig’s Disease, Blocked From Drug Trials
Catherine Wolf, pictured with her daughter Laura and her granddaughter Scarlett, has been living with Lou Gehrig's disease for 17 years. By Catherine G. Wolf: I am in my seventeenth year with ALS, also...
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Living with Epidermolysis Bullosa: Rare But Not Alone
Megan Barron, then 18, has lived with dystrophic epidermolysis bullosa her whole life, requiring regular care for painful blisters and scarring. This photo was taken the day she decided to attend Duke...
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Deciding to Live With ALS, Not Die From It
Catherine Wolf, right, pictured with her husband, her daughters, her sons-in-law and her grandchildren. (Image courtesy of Catherine Wolf) By Catherine G. Wolf: It was September 1997. I had hoped the...
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Fighting ALS and Insurance Denials
Catherine Wolf successfully fought for insurance coverage while living with Lou Gehrig's disease. (Image credit: Catherine Wolf) By Catherine G. Wolf: Your health insurer might one day deny you...
View Article11-Year-Old Regains Soccer Star Status After Rare Liver Cancer
When he was a month shy of turning 8, Chris Hegardt suffered a ball to the stomach during a soccer tournament that ended up being the tip-off that something was seriously going wrong inside of him....
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Obamacare Offers Hope for People With Rare Diseases
Megan Barron, 22, has epidermolysis bullosa, a rare skin condition, but the Affordable Care Act could be a huge help for her. (Credit: Courtesy Megan Barron) By Megan Barron Like many other young...
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Why Breast Cancer Is Embarrassing
Emily Helck was diagnosed with breast cancer when she was 28. (Credit: Courtesy Emily Helck) By Emily Helck: There’s a lot that people say about cancer. It’s scary, it’s tough. It’s no big deal. Chemo...
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My Breast Cancer Online Friends Get Me
Emily Helck was diagnosed with breast cancer when she was 28. (Credit: Courtesy Emily Helck) By Emily Helck I’m in Las Vegas, and I’ve lost my breast. To be completely truthful, it isn’t my real...
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Hyperacusis Diary: A Day in NYC When Every Sound Is Painful
Courtesy of Joyce Cohen By JOYCE COHEN Writer Joyce Cohen and her husband Ben live in New York City, one of the noisiest cities in the world. But loud sounds are torture to them, because they suffer...
View ArticleWhy I Don’t Mind Being a Human Science Experiment for Cancer Research
By Emily Helck While a wintry mix was making life generally slippery a couple of days ago, I was on my way from New Jersey to a hospital in northwest Washington, D.C. A few tubes of blood were drawn. A...
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‘Missing the Legs’: An Inside Look Into One Caregiver’s Life
(Jessica Allen) This post was written by Jessica Allen: Yesterday I spent my entire day at Fort Campbell helping their wounded, ill and injured with a variety of things. My day ended with me speaking...
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‘We Have PTSD’: Wife of Veteran Shares Experiences
Blair Hughes This post by Blair Hughes originally appeared on www.warriorsandwives.com I am the wife of a Iraq veteran with PTSD. For some, like my husband Jonah, the anxiety is so overwhelming and...
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Trauma Surgeon Uses War Zone Skills to Better Treat Patients at Home
By ELY BROWN and LAUREN EFFRON For trauma surgeon Dr. Peter Rhee, performing a couple of hernia repairs only to turn around hours later and treat a patient’s life-threatening stab wounds is just...
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Cancer Lessons I Learned From a Fictional Teenage Boy
Emily Helck was diagnosed with breast cancer when she was 28. (Courtesy Emily Helck) By Emily Helck In the days leading up to my reconstructive surgery, I was scouring breast cancer forums, looking at...
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Why ALS Can’t Stop Me from Dancing
Catherine Wolf has battled ALS, or Lou Gehrig's disease, for the last 18 years. (Credit: Courtesy Catherine Wolf) By Catherine G. Wolf I was at a blues concert in north of New York City when I started...
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World Cancer Day: Life After Recovery
Emily Helck is a patient blogger for ABCNews.com's "Day in the Life" series. (Credit: Courtesy Emily Helck) By Emily Helck There’s a phrase that was tossed around a lit class I took once: the long 18th...
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